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Thursday, June 4, 2015

BRAIN TUMOR, TWO LITTLE GIRLS, BEAU BIDEN, TRUE LOVE... -Confessions and reflexions of the blogger


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English: TAC_Brain_tumor_glioblastoma-Coronal_...
Inglese: TAC_Brain_tumor_glioblastoma-Coronal_plane Italian: Image TAC area of the brain, identifying a type of tumor glioblastoma (Photo credit: Wikipedia )
 

     
 Year 1973

This was a year when  George Steinbrenner III bought Yankees
from CBS for $12 million,
UCLA's basketball team won 61st consecutive game
 (NCAA record) and Monte Irvin was elected to baseball
Hall of Fame.
This was a year, when Triple Crown horse Secretariat was sold for a record $5.7million,.. Stevie Wonder spent 4 days in coma after the car crash....  America held funeral service for LC William Nolde, last US soldier killed in Vietnam War..October 26 -first tapes released of Watergate scandal...
 US President Nixon signed  Endangered Species Act into law and Gerald Ford became 1st unelected Vice President. This is a year...

Just one year before
 4 1/2 year old little Stephanie, a sweet
young girl that loved dancing, skating,
 swimming, was diagnosed with a brain
English: A photo of the Watergate Complex take...
English: A photo of the Watergate Complex taken from
 a DC-9-80 inbound to Washington National Airport
 on January 8, 2006. (Photo credit: 
Wikipedia)
tumor. In spite of a surgery, radiation            
and short period of relatively 'normal' life ,
 two weeks after her seventh birthday, she passed away in 1974. Her mother was 
 Susan Netchin Kramer.

1. Stephanie
7 years old brain tumor victim
               Then there was  another little girl,  Micki Rae Shanoff, whose 
mother   Linda Gene Goldstein described the day of her birth in the year 1966 as 'magical Sunday' -died also from brain tumor,  when she was only 6 years old.
.As her mother Linda said in her own words:
2. Micki Rae
6 years old brain tumor victim 
           "...Micki Rae loved go-go boots, warm jammies, patent leather shoes, frilly dresses, sewing with my  mother (her "Yammie Essie") and teaching her how to work “Cat in the Cradle," going to lunch with  Daddy on Sundays, and anything that was purple. Of course she loved her dolls and two story doll  house. She loved “Sesame Street,” “The Mary Tyler Moore Show,” “The Brady Bunch,” the Pickle Barrel, Hackneys, dolls (especially bridal dolls), “It’s a Small World” at Disneyland, ice skating, playing Candy Land, writing notes of love to her family, and crawling in bed with me on Friday nights (Daddy’s night out) with a pizza, to watch “The Odd Couple.” A huge Tom Jones fan, her favorite song was “Delilah”--or as she called it “Dewyla.”

Her favorite thing in the world, though, was a red “Bow Wow” her Daddy gave her. Bow Wow 
went everywhere with her. In fact, he is with her now*.."

As you can see a little girl was very, very busy liking and loving the world around her.
There are many who plans the birth. But who can determine when is the time to die?
Whatever one might think, never that young. In case of Micki Rae first she complained
that she sees double, then was diagnosed with 'lazy eye'. but exploratory surgery revealed
 that she had a glioblastoma  mutliforme of the pons, with only 4- 6 month to live.
 Most of that time, mother and daughter spent in the hospital.

That two short lives, mostly happy, full of kids type activities and joy, that is when 'not put on
 hold back' by the sickness, gave a foundation, more - were inspiration for the two mothers
 to create a unique organization. 
Organization that would filled in the strong need, but up to that time did not existed.
Organization whose mission would be:
"... to advance the understanding and treatment of brain tumors with the goals of improving, 
extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis..."

That was the year 1973**...
The two mothers of brain tumor victims, Susan Netchin Kramer and Linda Gene Goldstein, 
in 1973 created first of its kind nonprofit Chicago based organization called, at the beginning  
the Micki Rae Shanoff  Foundation for Brain Tumor Research. Later the name was changed to 
American Brain Tumor Association ( ABTA). 
40+ years later , ABTA grew, flourished, expended and now, we have more organizations joined 
in research, care, support, but in spite of all the humans efforts the mortality is high specially for
 children. In children and young people under the age of 20 , after leukemia, brain tumor
 is second leading cause of death in America.
This year alone we can expect another 4,600 youth under age 19 to be diagnosed with brain
tumor that statistically in youngster is more deadly for male than female.
This year almost 70,000 new cases of primary brain tumor is going to be diagnosed with one 
of 120 types of known brain tumors.
Generally speaking in USA brain tumor is rather rare - only 1.4% of all other type of cancers.
1/3rd of the victims of brain tumor has chances of surviving for more then 5 years 
 (National Cancer Institute)..
 The most common primary brain tumor. is Meningiomas (34% of all primary brain tumors)
- 80% of all malignant tumors are under the broad generic name called Gliomas
( all tumors arising from the gluey or supportive tissue of the brain).
34% that is the majority of primary tumors are located within the meninges part
of the brain.

Glioblastomas (very aggressive type) in patients aged 20-44 have a five-year
survival rate of 17% and only a 4% rate in patients aged 55-64
( Charles Patrick Davis, MD, PhD).
Primary brain tumors are more rare then metastatic tumors, that originates someplace
else in the body.

We are so far away from 1973, when first time ABTA stepped in and we still are in dark
as to the causes of the brain tumor. We know some possible and contributing factors,
but not positive and primary. We know that heritage could be possibility and environmental,
life style, like smoking could be contributing. But it is believed that exposure to chemicals,
or to a type of radiation called ionizing radiation, that damages DNA can be contributing
factor in developing brain tumor. On other hand FDA and statistic do not support popular
belief, that brain tumor is caused by cell phones, since radio-frequency energy is not known
 to damage DNA.

In America, presently almost 700,000 people are living with a brain tumor... and from
that number 14,000 will die.

                                                           

3. Beau Biden
son of Vice president Joe Biden
Beau  Biden, the oldest son of Vice President Joe Biden was diagnosed with brain tumor.
First he had a small lesion on the brain. That was removed successfully,
 but now..
On May 30, 2015 Beau Biden passed away after a weeklong stay at Walter Reed
 National Military Medical Center,
 He was only 46 years old- leaving behind family:
wife-Hallie,children- Natalie and Hunter and...father that he loved very much.

4. Beau Biden with family
My sincere condolence goes to his father Vice president Joe Biden and family.
Even before this dear death, Joe Biden personal life was multiple times struck and
 molded by tragedy.





When Joe Biden was only 30 years old man ....in 1972 one week before Christmas...his world as he built was shattered. The car crash  claimed the life of his young wife and infant daughter, and left two of his sons Beau and Hunter in medically critical condition.
Joe Biden took his senatorial oath from hospital room of his sons.

He worked hard  through his anger..there were a bottle and a lot of doubts - normal human reaction
in such a circumstances....and still he had commitments to his senatorial job and taking care of his sons. 4 h/per day he commuted by train  to work from Wilmington to Washington. Everyday.
He traveled one direction then returned home to be with his...sons. Dedication of the father.
I think that during his train trips, Joe Biden had a lot of time to reflect on the events in his life and
generally think life through. Possible that these trips, that thought that he nurtured help him to become
not only more of the father but a better public servant and patriot. His son Beau adopted father;s
patriotism and as a major In Delaware Army National Guard spent one tour in Iraq
from Oct.2008 to Sept.2009, working as a judge advocate general. During this time Beau Biden
was holding position of Attorney General of Delaware, since winning it in election of  year 2006.
He hold that position for two terms..
... His real ambition was to become a Delaware Governor in 2016.
5.Father and son
Vice President Joe Biden
with his oldest son
Beau Biden
Beau was well liked, popular ...dedicated family men....book like character of the hero posture, strongly independent, with masculine courage and determination that all his achievement be his own...earned..not handle down.
But how to win battle with brain tumor? Courage...not enough...
Brain tumor can affect anybody, irregardless of age, race or gender.  It's a worldwide shared
malady, dished with malice and Joe Biden knew somebody else, another senator,
who died from It.

6.Ted Kennedy with Joe Biden
TED KENNEDY! The men with great legislative skills and political cloud...
Born to privilege, the youngest brother of President John F. Kennedy...
Democratic Senator from Massachusetts,
known as the"Lion of the Senate".
The second longest serving senator since 1962,,,great politician...and shady private life.
 Charismatic and womanizer like all Kennedy's men.- drunkard, that got away only
with tiny suspension for causing the death of young passenger Mary Jo Kopechne
in the car that he drove off  the bridge
(July 18,1969)
It took him 10 hours to report accident to Vineyard police. Unforgivable cowardice and action
unbecoming to USA Senator.
  
Biopsy revealed that Senator Kennedy had the malignant glioma tumor of the parietal lobe
 of his brain-the most aggressive type, called a glioblastoma. Patients with this type
of tumor live no longer than 18 month. Senator Kennedy lived 15 months.

On August 25, 2009 Senator Ted Kennedy passed away at his home in Hyannis Port,
Massachusetts at the age of 77.

                                                               


I have something in common with Susan Netchin Kramer, Linda  Gene Goldstein,
 Vice President Joe Biden, and thousands of others that lost somebody very dear to the
brain tumor.
You see, years ago I lost my father to very evil, fast growing and unoperateable, deadly
glioblastoma.  My father, Marian Weglarz phd, was a wonderful family man, 68 years old
when he died two months after first diagnosis. My father for years suffered from
migraine headaches, and he lost sight in one eye. He was on vacation in Peru with my mother
and their grandson, when suddenly he experienced very heavy nose bleeding and half of his
 body was paralyzed.
In the following nightmarish days became apparent that there is no chance
for surgery or recovery.

7..My parents
Mother 13 years old, father - 16
TWO LIVES - ONE LOVE

                                                                 
8..The back of my father's photograph
dedicated to my mother
with the deepest love
(damaged by child's hand)

9..My father on the right
of LECH WALESA
-future president of Poland,
and recipient of Nobel Prize
(Institute of Technology-Warsaw, Poland) 

10.. My father with
polish President Kwasniewski (in the center,
my father on the left)
Institute of Technology- Warsaw, Poland
 

18 years ago-and I am still missing him dearly, unable to overcome my loss of his
advise.., the loving presence of a father...the perfect dedicated husband and a friend to his
 childhood sweetheart since he was 16 years old,,,Oh! My magnificent father...
Still there are  times when my body shakes with tremors, my heart beat in pain...
I fold my hand, one into other, trying to keep control over..I walk around calling his name..
18 years passed and...I am missing him...
I am SO SORRY, for your loss Mr. Vice President!...
I AM SORRY FOR WHOLE FAMILY!...


The year 2015.
Lithuania  became the 19th member of the Eurozone...Hillary Clinton announces she will
 run for the Democratic nominee for US President...400 drown, as migrant ship carrying
around 550 sinks near Libya...and  less than 50 survivors when cruise ship carrying
 450 people capsized on Yangtze River,,,earthquake in Nepal -8,000 killed and 100,000
 are homeless...
...January 13, my mother passed away - the dearest and sweetest heart...my best friend...
another friend of mine, faithful, loyal, very loving - dies from complications
of diabetics-my dog..

... Picasso's painting 'The Women of Algiers (Version ‘O’)  fetched the record price
 of $179.3 million on auction at Christie's in New York...
....officially India's population reached 1 billion and Astha Arora became
 India's billionth baby...
...9 deaths, 18 injured, 170 arrested for organised crime, as the result of gun fight between
rival biker gangs in Waco, Texas...

... US fined $5.7bn  - some of the largest ever fines ( May 20th) for manipulating currency markets - by 5 major world banks (JPMorgan, Barclays, Citigroup, RBS and UBS)...
... the very old woman Harriette Thompson aged 92 and 65 days becomes the oldest woman to complete a marathon (in San Diego)...

...personal accomplishments and grief ,,,world's size failures...greed and intolerance...

Jun 2nd - FIFA President Sepp Blatter in view of allegations of  bribery scandal resigned ...
...new world record for tree planting - 49,672 in 1 hour by 100 volunteers in Bhutan
..B.B. King -blues, guitarist, song writer dies and  Joseph Lechleider, engineer, inventor
of  DSL/high speed internet technology- died at 82.


We still have the ugly, barbaric indusrtylized killings of animals in factory farming... there
are evil people that shamelessly are clubbing young seals, others skinning alive, maiming and torturing animals like dogs, cats,angora rabbit for consumptions, furs or just for entertainment industry. There are a shameless ag-gag laws in some states - ,the cover up, the evil arrogance of humans trying to cover up abuse and
senseless cruelty to animals, violating our rights to know and to transparency.

Is there any animals that we, as people do not abuse, or do not try to take advantage given
a chance? Oh! I got it...dinosaures..well, yes..but they're death!
Still Ebola...setbacks and continuous fight, giving help...Doctors Without the Borders (MSF)
in their quarterly magazine "Alert" brought touching story...two pregnant women infected with
ebola after expelling infected fetus - survived!..., a first time success of this type...
How poor and totally cold would be our world without our charitable, dedicated and nonprofits!
...MSF, Clinton Foundation, Mercy Ship, UNICEF...
The millions spent on the wars, fighting...spent on destruction...
Yemen as reported by Doctors Without Borders (MSF) - 1,800+ dead, 1,600 wounded
and treated...and shortage of meds, clean water, electricity...with every war there is pain,
deaths, rapes, poverty, misplacement, homelessness...
Africa knows no rest...Ukraine,..Syria... Iraq...
 ...Same-sex marriage is legalised in Ireland by popular vote.. and in Iraq
!..public executions and stoning...
-June 3rd, three blindfolded  men, accused of being gay were murdered by militants, by
dropping them from 100 ft high building in Mosul in front of hundreds watching...
All the money spent on hate...instead for research and cure of world's pain of dying young,
before time from one or another desease...
All the money spent on hate...instead on  sustaining and caring for the magnificent, multi forms
of animals living on our planet...
All the money spent on hate...instead of supporting each other for better life...for clean water..
and cheap energy...better jobs, education...building culture...
...all the money spent on arrogant personal ambitions and  hate...!

The countless, loving people, homeless, misplaced and living under regime...
 standing with folded arms in desperation...
Where is the hope?
The year 2015 - Are we really moving forward? Don't leave the heart behind!
                                                                 

June 6, Saturday - President Barack Obama will deliver an eulogy at Beau Biden’s funeral during the catholic ceremony 
in Wilmington, Delaware*.

                                                     

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Additional notes, attributions, references

Every month the ABTA conducts a webinar for general public (central time), later posted on:
http://www.abta.org/brain-tumor-information/anytime-learning/
In regards to the subject of brain tumor If you have questions, 
or are looking for help or resources, please
 call our ABTA CareLine at 800-886-ABTA (2282)
 or send an email to: abtacares@abta.org.
You can download informativefree publication
About Brain Tumors: A Primer for Patients and Caregivers






REPORTS/TABLES from CBTRUS
Supplemental publication to official journal
 'Neuro- Oncology'
The CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2007-2011 



 Free to View web publication through a link to Oxford University Press at



Reference:
http://www.abta.org/about-us/susan-netchin-kramer.html
( photo #1.of Stephanie is from that place, claimed by me as Fair share )
 * http://www.abta.org/about-us/linda-gene-goldstein.html
(photo#2 of Micki Rae, under the fair share)
** http://www.abta.org/about-us/news/brain-tumor-statistics/? referrer=https://www.google.com/
American Brain Tumor Association
8550 W. Bryn Mawr Ave. Ste 550
Chicago, IL 60631
© 2014 American Brain Tumor Association
               



               


American Brain Tumor Association.
uses  statistics  ( I also quoted here) from
 Central Brain Tumor Registry of
the United States (CBTRUS)
www.cbtrus.org
http://www.theatlantic.com/politics/archive/2015/05/beau-biden/394523/
http://www.dailymail.co.uk/news/article-3108860/Gripped-ankles-man-held-100f
t-drop-bloodthirsty-crowd
June 4th
bBy JOHN HALL FOR MAILONLINEy
http://www.medicinenet.com/brain_cancer/page3.htm
Brain Cancer
Medical Author:
Charles Patrick Davis, MD, PhD
Medical Editor:
Melissa Conrad Stöppler, MD

http://www.livescience.com/51040-beau-biden-brain-cancer.html

Beau Biden's Death: 5 Facts About Brain Cancer
by Rachael Rettner, Senior Writer   June 01, 2015 05:01pm ET
http://www.newsweek.com/ted-kennedy-car-accident-chappaquiddick-207070lated articlesen.wikipedia.org/wiki/Ted_Kennedy
http://abcnews.go.com/Business/cancer-wall-st-billionaire-teddy-forstman

n-type-brain/story?id=13734396
"Barack Obama prepares eulogy for Beau Biden Funeral"
-article by Sarah Wheaton, White House reporter -6/2/15

PHOTOS:
 Public domain, no license, Wikipedia
 -given to me my blogger apps Zemanta.
Photos # 3, 4, 5, 6, - Google search, no license, free. Thank you Google
Photo, No 7, 8, 9, 10 of my father - My own, private collection, given to me
by my father and family, First time published. Can be used with attribution
to my side as I am the rightful owner.

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